Supporting the Development of Newborns with Cardiac Conditions

A nurses for newborns reading a book to an infant.

Newborns with cardiac conditions can face unique challenges. But with the proper support, they can thrive and reach their full potential. Fortunately, nursing care can help nurture your child through their early stages of development. By closely monitoring their health and managing their treatment, nurses for newborns can significantly influence your infant’s growth, well-being, and overall development.

Understanding Cardiac Conditions in Newborns

Cardiac conditions or congenital heart defects happen when there’s a problem with the structure of an infant’s heart at birth. These conditions can vary in severity and impact, where some don’t need surgery while others require complex care.

Common types of cardiac conditions in infants include:

  • Atrial Septal Defect (ASD)
  • Patent Ductus Arteriosus (PDA)
  • Transposition of the Great Arteries (TGA)
  • Tetralogy of Fallot (TOF)
  • Ventricular Septal Defect (VSD)

Babies with congenital heart diseases may achieve their developmental milestones slower than other infants. Fortunately, nurses for newborns can help in pediatric care and support.

The Roles of Nursing Care in Early Diagnosis and Management

Early identification of cardiac conditions in newborns is important so they can start treatment promptly. This can significantly improve outcomes and reduce complications.

Nurses for your baby are often the first to notice signs of a potential cardiac issue. They regularly check your infant’s vital signs and perform physical assessments to evaluate their health status. If they notice symptoms, they will inform you and refer you to a specialist. 

Supporting Physical Health and Development

Nursing care can help support your infant’s physical health and development. In addition to monitoring their vital signs and administering medication, they can help with nutrition and feeding.

Growth and development in children with heart disease have a big impact on their overall health. Babies with cardiac conditions have difficulty gaining weight since their bodies burn more energy from breathing faster. Some babies may also be unable to absorb nutrients properly because their intestines don’t get enough oxygen. To help maintain a healthy weight, the nurse can help implement the customized nutritional plan created by your baby’s dietician.

Nurses can also introduce techniques to address feeding challenges. For example, they can administer smaller and more frequent feedings to ensure your infant gets the necessary nutrition. They can also monitor for signs of feeding intolerance and adjust their techniques as needed.

Providing Emotional and Psychological Support

While babies may not process their emotions the same way as older children or adults, they’re still highly sensitive to their surroundings and the care they receive.

Nurses for newborns can help support your baby’s emotional and psychological needs by providing a calm and comforting environment. Thus, establishing a consistent routine can make your infant feel stable and secure so they don’t feel stressed.

Nurses can also minimize your baby’s pain through medication or comfort measures like holding or skin-to-skin contact. In addition, medical professionals can also encourage you to be actively involved in your baby’s care so that you can create a strong emotional connection and bond.

Facilitating Developmental Milestones

As previously mentioned, babies with cardiac conditions can achieve development milestones at their own pace. Professionals from home nursing care services can incorporate stimulating activities into their routines to support your baby’s development. These age-appropriate activities will help strengthen your infant’s cognitive, motor, and social skills.

Here are some examples of these activities:

  • Touching and talking
  • Playing soft music
  • Reading aloud
  • Playing with toys with different textures, colors, or sounds
  • Tummy time
  • Head-lifting exercises

They’ll also guide you through techniques, positioning, and interactions so you can feel confident driving your baby’s development progress.

Long-Term Care and Follow-Up

Ultimately, neonatal nursing services can assist with your baby’s long-term care and follow-up. They provide continuous monitoring to assess your baby’s heart function, growth, and development. They can also help detect sudden changes in your infant that may require intervention.

Moreover, nursing care can offer ongoing therapeutic support, family education, and coordinated care. Aside from keeping you updated on your baby’s condition and development, continuous care also ensures they can lead a healthier and fulfilling life as they grow.

Choose Nursing Evolutions for Quality Nursing Care

Nurses for newborns with cardiac conditions can play a significant role in their support and development. They can assist you in managing their conditions and support their development. Thus, you can ensure your baby will have the best possible start in their life.

For compassionate nursing care services for medically fragile and complex babies, consider talking with your physician about Nursing Evolutions. We provide outstanding critical nursing care to help progress medically fragile babies and toddlers.  We help them transition safely out of the hospital to home. For more information, contact us today!

Frequently Asked Questions

For more information on newborn nurses, here are answers to frequently asked questions:

What is the role of a newborn nurse?

A newborn nurse provides care and support to infants in the early stages of their life. They offer medical care and fulfill their developmental needs to ensure your child’s well-being and healthy development.

What does a nurse do when a baby is born?

Nurses often perform a detailed physical exam on newborns to assess their condition and identify any birth injuries or issues. If they need to check further, they move the baby to the Neonatal Intensive Care Unit (NICU). 

How to become a nurse for newborn babies?

To become a nurse for newborn babies, you’ll need to complete a Bachelor’s degree in Nursing, secure a nursing license, obtain experience in the NICU, and earn certifications for neonatal nursing.

Tips for Infection Control in Pediatric Home Care

a healthcare provider checking the vital signs of a girl

Infection control is important in pediatric home care. It ensures that children with medical needs stay safe and healthy at home. After all, your child can have a compromised immune system or may be undergoing medical treatments that increase their vulnerability to infections. So, knowing the best practices medical professionals implement to control infections is important.

To help keep your home safe, below are valuable tips and strategies to enhance your child’s protection.

Understanding Infection Risks in Pediatric Home Care

The first step to preventing infections in pediatric home care is to know their sources. The most common viral and bacterial infections that affect children include:

  • Skin infections. Cuts or scratches on children’s skin can infect them with conditions like impetigo, cellulitis, and abscesses.
  • Throat infections. Bacterial pneumonia and bronchitis are infections that bacteria can cause in children’s lungs and airways. These infections could lead to cough, fever, and difficulty breathing.
  • Colds. Caused by various viruses, which manifest into symptoms like runny nose, sore throat, and cough.
  • Influenza (flu). This type of infection is caused by a virus that can spread through respiratory droplets. It’s characterized by high fever, body aches, cough, and fatigue.

Understanding these infection risks helps you and your child’s caregivers take the appropriate precautions to protect your child’s health and effectively manage potential threats.

Basic Infection Control Practices

Below are the best practices that medical providers implement to prevent infections during pediatric home support: 

Hand Hygiene

Handwashing is one of the most effective methods for preventing infections in pediatric patients. It reduces organism transmission, which can help protect them against conditions like diarrhea and respiratory illnesses.

It’s advised that you wash your hands according to the following situations:

  • Before, during, and after food preparation 
  • After eating
  • When arriving back home after going outside
  • After caring for or playing with pets
  • Before and after administering medication
  • Before and after handling medical equipment

Hand washing is most effective when you scrub your hands with soap and water for at least 20 seconds. To enhance protection, you can also apply hand sanitizer after hand washing. It’s also a good alternative if you don’t have access to soap and water, as long as the hand sanitizer contains at least 60% alcohol.

Cleaning and Disinfection

Cleaning and disinfection are important methods to implement to prevent infection in pediatric home support. Surfaces that need frequent cleaning include:

  • High-touch surfaces (ex. door knobs, light switches, countertops, etc.)
  • Personal items (ex. pacifiers, teething rings, etc.)
  • Toys

For high-touch surfaces, use disinfectant wipes or a disinfecting solution and a paper towel to clean. To prevent cross-contamination, use separate cleaning materials for surfaces that come in contact with food (e.g., countertops).

For toys and personal items, wash them in the dishwasher if they’re dishwasher-safe. Otherwise, use soap and water for cleaning. Afterward, ensure each item is thoroughly dried before returning it for your child’s use.

Personal Protective Equipment (PPE)

Wearing proper personal protective equipment (PPE) can also help prevent infections during home nursing care. PPE protects you and your child’s nurses from exposure to body fluids and potentially infectious materials.

Examples of PPEs include:

  • Gowns
  • Gloves
  • Masks
  • Googles

To prevent contamination, store unused PPE in a clean, dry area. It’s also a good idea to keep them in their original containers until you need them.     

Managing and Preventing Infections

Now that you’re aware of the best practices for preventing infection at home, here are steps you can take to manage and prevent its risks:

Monitoring Health

Knowing how to detect the early signs of infection can significantly reduce its risks. That said, it’s a good idea to develop and maintain a system of identifying symptoms during pediatric home care.

Some signs of infections you can watch out for include:

  • Fever
  • Rash
  • Cough
  • Vomiting
  • Diarrhea
  • Difficulty breathing

Regular visits to your child’s doctor can also help monitor their health and catch any potential infections.

Medication and Treatment

If your healthcare provider detects symptoms, they will prescribe your child antibiotics for bacterial infections and antivirals for viral infections. Make sure to use the medication as prescribed by your doctor to ensure its effectiveness and reduce the risk of resistance.

It’s also best to do regular follow-ups with pediatric health services. This way, they can evaluate the medication’s effectiveness and adjust your child’s treatment plan if needed. Also, don’t forget to watch out for any side effects of the medication. If you spot some, report them to your child’s doctor immediately.

Preventive Measures

Vaccines are a safe and effective method for building your child’s immunity against various serious diseases. To reduce the risk of infections, make sure your child’s immunizations are up-to-date. Ensure they get routine vaccines for measles, mumps, rubella, and influenza.

Depending on your child’s condition, they may also need additional vaccines because of underlying health conditions. If this is the case, it’s best to consult their doctor for vaccination recommendations.

Choose Nursing Evolutions for Compassionate Home Care

Knowing how to control infections is an important aspect of pediatric home care. It helps protect your child from having their condition from exacerbating. That said, implementing strategies and best practices, such as proper hand hygiene and cleaning, are effective methods for keeping your home safe.

To ensure your medically fragile child’s safety and protection, consider talking with your child’s physician about a trusted pediatric care service like Nursing Evolutions. We provide outstanding, patient-centered nursing care based on literature-based practices. For more information, contact us today!

Frequently Asked Questions

Here are the answers to your frequently asked questions to help you learn more about pediatric at-home care:

What are the situations in which home care commonly is used for children?

Pediatric home care is most common for children with chronic or severe conditions, such as cardiac disease, complications from prematurity, and neurodegenerative diseases.

What is the function of home care?

Pediatric at-home care aims to support children with medical needs, disabilities, or chronic conditions while allowing them to remain in a familiar and comfortable environment.

How to care for pediatric patients?

Caring for pediatric patients involves closely monitoring their medical needs, administering medication, and providing personalized therapies. It also ensures their comfort and emotional well-being are in good hands. It also includes ongoing communication with medical providers to adapt health care plans.

Managing Respiratory Distress in Preterm Infants

nurses for newborns holding infant's hand in an incubator

Respiratory Distress Syndrome (RDS) occurs when a baby’s lungs aren’t fully developed, causing breathing problems. It’s a common issue for infants born prematurely, so nurses for newborns will need to provide them with extra oxygen and breathing help. To keep your baby safe and healthy, below are steps you can expect to manage RDS.

Causes and Risk Factors of Respiratory Distress Syndrome

The common cause of RDS is when the baby doesn’t have enough surfactant in their lungs. It is a liquid that helps keep their lungs inflated and prevents them from collapsing. An infant usually starts to produce surfactant between 24 – 28 weeks of pregnancy, where they usually produce enough to breathe normally by 34 weeks. So, the earlier your baby is born, the more they’re at risk of developing RDS. Other common causes for RDs include:

  • Transient Tachypnea of the Newborn (TTN)
  • Meconium Aspiration Syndrome (MAS)
  • Pneumonia and infections

Although most babies with RDS are premature, other factors also influence the risk of developing the disease, such as:

  • Siblings born with RDS
  • Cold stress
  • Underweight
  • Delivery complications (ex., cesarean section, perinatal asphyxia)
  • Maternal health conditions (ex., diabetes, infection)
  • Multiple births

Clinical Presentation and Diagnosis

The symptoms of RDS are immediately noticeable after birth. A child with this syndrome is believed to have blue-colored lips, toes, and fingers. It also has deep and rapid breathing, flaring of nostrils, grunting sounds when breathing, and chest retractions. To assess if your baby has RDS, doctors, and nurses for newborns perform tests such as chest x-rays, laboratory tests (ex., blood gases, CBC, and cultures), and echocardiography

Initial Stabilization and Management

Each baby will experience the symptoms differently, but they often peak 72 hours after birth before they get better. A registered nurse for babies may help stabilize your infant’s condition by:

  • Placing them in a neutral or slightly extended neck position to maintain an open airway.
  • Suctioning their mouth, nose, and pharynx to remove secretions that could block airways.
  • Attach a nasal cannula under your baby’s nostrils for non-invasive oxygen support.
  • Using a Continuous Positive Airway Pressure (CPAP) machine to provide extra breathing support.
  • Utilizing a ventilator to send air into your baby’s lungs.

Preterm babies with RDS often only need breathing support for a few days. But if your infant is born extremely preterm, they may need breathing support for a few weeks or months. It’s best to consult with your doctor about your baby’s treatment plan so you know what to expect.

Surfactant Replacement Therapy

If your baby’s RDS symptoms persist, children’s nurses and doctors may need to provide them with surfactant replacement therapy (SRT). It’s a treatment that delivers surfactant until your baby’s lungs mature enough to produce the liquid on its own. Doctors supply the surfactant through a breathing tube to ensure it goes into your baby’s lungs. Depending on the severity of their condition, your baby may need to get this procedure done several times.

Administering surfactants within 2 hours after your baby’s birth provides better results, including reducing air leaks and chronic lung disease. Although administering several hours after birth can still be beneficial, it’s less effective than early treatment for reducing complications and improving survival rates.

nurses for newborns holding a baby in the hospital

Complications and Additional Therapies

Babies with RDS often develop complications due to the side effects of the disease, so nurses for newborns may need to provide them with additional therapy. Common complications of RDS include:

  • Pneumothorax. Air leaks out of your baby’s lungs and gets trapped in their chest cavity. This can be treated by inserting a tube into their chest to release the air.
  • Internal bleeding. Your baby may have bleeding inside their brain and lungs. It’s quite common for preterm babies and can be treated with a ventilator.
  • Lung scarring. The ventilator or surfactant can cause lung scarring that can affect their development. Babies with severe lung scarring may need additional breathing support and medication to expand their airways to make breathing easier.
  • Pneumopericardium. Air leaks into the sac surrounding your baby’s heart. Healthcare professionals treat this by decompressing the air with a needle or inserting a catheter to drain the air.

Infants with RDS will also need higher nutritional requirements to aid development, so they often have an Intravenous Catheter (IV) to get fluids, nutrition, and medicine. Doctors may also prescribe them with antibiotics if they suspect an infection or to help ease your baby’s pain during treatment.

Prevention and Risk Reduction

Preventing a premature birth is the best way to reduce the risk of RDS. You can avoid a premature birth by getting frequent prenatal care throughout your term and avoiding smoking, alcohol, and illicit drugs. Additionally, seeking support from nurses for newborns can provide valuable guidance and care.

If you’ll likely have a preterm delivery, pediatric health services may prescribe you with corticosteroids. The medication will help promote faster lung development and surfactant production for your baby.

Long-Term Management and Follow-Up

With the right treatment and medication, babies with RDS may not experience long-term effects and may even improve their quality of life. However, if complications occur, your baby is at a higher risk of developing:

  • Asthma
  • Respiratory infections
  • Lung damage due to long-term ventilation
  • Bronchopulmonary dysplasia

In this case, talk to your pediatrician for advice on the long-term management of your baby’s condition. Depending on their symptoms, your baby may need further testing, like eye and hearing exams, to ensure RDS hasn’t affected their development. Long-term management can feel overwhelming and stressful for you and your family, so don’t be afraid to reach out to a professional therapist or support groups to seek encouragement and help with dealing with the emotional strain.

Final Thoughts

Respiratory Distress Syndrome can be challenging to navigate. If undetected and untreated early, it can cause complications that can affect your infant’s development. Fortunately, with the right treatment and care from reputable doctors and nurses for newborns, your baby’s condition can hopefully improve. If you need help managing your baby’s RDS, speak with your child’s physician about pediatric caregiving support services like Nursing Evolutions. Our top priority is to ensure the health and well-being of our patients. We provide you with the best possible care and safety for your baby.

Frequently Asked Questions (FAQs)

Here are answers to common questions to help you understand how a neonatal nurse can assist with your baby’s condition:

What do neonatal nurses do?

A neonatal nurse is a healthcare professional that specializes in caring for newborn babies. 

What are the goals of a neonatal nurse?

A neonatal nurse’s goal is to ensure each baby is safe and comfortable. They also provide constant monitoring and care to medically fragile infants, including administering special feedings and medication to help stabilize their condition.

Pediatric Home Care Tips for Fragile Infants

nurse preparing an infant to transition to home care

Bringing medically fragile infants home from the hospital is an important milestone for families. However, the transition can be daunting because you want to create a safe environment for your bundle of joy. With the medical and care considerations you need to remember, it can be easy to feel overwhelmed and anxious. To help make the transition easier, below are our top pediatric home care tips to help you during this preparation stage.

Pediatric Home Care Services For Infant Needs

As excited as you are to bring your baby home, transitioning from the hospital to your home can be stressful. This can happen if you don’t prepare the environment beforehand. Medically fragile infants require specialized care because of their complex medical conditions. That’s why understanding their needs can help you provide the appropriate awareness and support.

In that regard, you should consult a specialist about pediatric home care and medication. If your baby requires medical support, ask about the equipment’s requirements. Complete information about your baby’s needs will help you determine what changes you should make at home to develop a supportive care plan.

Medical Equipment and Supplies

Depending on your baby’s condition, they may need medical equipment to improve their quality of life. However, learning how to navigate medical devices can feel overwhelming at first. When this is the case, families can benefit significantly from hiring pediatric nurses. After all, they have the skills and expertise to operate equipment to ensure your baby’s health and safety.

It’s also best to keep a list of supplies and medication your baby will need. This will help you stay organized and not overlook any instructions from your doctor.

Home Environment Modifications

Before bringing medically fragile infants home, consider what you need to modify at home to make it a safer environment. For instance, you may have to rearrange the furniture in their room to accommodate medical equipment. That said, you need to create a designated storage area for their medical supplies to help keep them organized. Make your baby’s room more comfortable by considering their sensory needs. To do this, provide them with soothing music, soft lighting, and tactile toys.

Improving your home’s accessibility can also make it easier to care for your baby. You can replace stairs with ramps so nurses can easily transport your baby with a medical stroller or wheelchair. It’s also a good idea to install accessible features in your bathroom so caregivers can assist your baby with bathing and hygiene routines without hassle.

a mother incorporating sensory stimulating activities into pediatric home care.

Developing A Care Routine

A pediatric home care routine can help ensure you provide your baby with consistent and quality attention. That said, consult your baby’s doctor to create tailored feeding, hygiene, and medical management plans that support your infant’s condition. Remember to incorporate sensory-stimulating activities into the routine to develop your child’s cognitive, motor, and social skills. This may include talking, singing, and playing with toys.

When creating a care routine for your baby, make sure to involve your family members so you can consider their input and concerns. If you’re hiring a nurse, make sure to list your care routine in a binder for easy reference. Provide detailed information about your baby’s schedule, medication, and other relevant information you want to share with your caregiver. This can include their preferences for foods, toys, etc.

Emotional and Psychological Support

Taking care of a medically fragile baby can be emotionally taxing for parents and family members. After all, the constant vigilance and the stress of managing complex medical needs can lead to feelings of fear, anxiety, and isolation. That’s why acknowledging these emotions and understanding that they’re natural responses to the circumstances is important. 

Before transitioning your baby to home care, find a reliable counselor. A professional therapist can offer your family valuable coping mechanisms and emotional support to navigate these emotions. Hospitals and community organizations also provide support groups for families of medically fragile children. 

Hiring a registered nurse for babies will also be helpful because it will give you time to rest and recharge. When you have the time, do self-care activities like exercise, hobbies, or maintaining your mental health.

Coordination with Professional Pediatric Health Services

Pediatric health services can make your baby’s care easier. Aside from being medically licensed to handle medical equipment and medication, they’ll also provide you with time to care for other family members or go to work. That said, working with a registered nurse gives you the peace of mind that your baby is well-taken care of.

To ensure your baby’s care stays consistent, inform and train your caregiver about their routine. Develop a system for documenting care activities, like medication administration, feeding volumes, and vital signs, so that you can monitor your baby’s progress. Record them in journals or utilize mobile apps. Establishing clear communication to share information and discuss concerns is also important.

Emergency Preparedness

To stay prepared, it’s important to have an emergency plan that responds to medical crises, such as respiratory distress, seizures, or changes in your baby’s health status. Train your nurses about emergency medical procedures and know when you should seek medical assistance. Make a list of emergency contact numbers, including your baby’s pediatrician and emergency medical services.

Health-compromised infants are also more susceptible to infections and illnesses, so it’s important to bear their safety in mind. In this way, you are able to prevent medical emergencies that exacerbate their condition. For instance, you can use sterile equipment when changing your child’s ties and dressings to prevent tracheostomy infection.

It’s also good to draw a plan for natural disasters like fires, hurricanes, or floods.  Strategize how you’ll evacuate your home by locating the nearest exits. Consider how you’ll transport the required medical equipment and supplies so your baby stays healthy and safe.

Final Thoughts

Transitioning medically fragile infants from the hospital to home care doesn’t have to be as stressful. The trick is to develop a solid care plan to make the transition process easier. However, developing a care routine, modifying your home environment, and navigating medical support can feel overwhelming for you and your family. 

Opting for pediatric home care services from reliable sources like Nursing Evolutions can be beneficial. We aim for a positive impression and ensure infant safety between and after they make their way home. In short, we bridge the gap from hospital to your home. For more information, contact us today!

Frequently Asked Questions (FAQs)

Here are answers to some of the frequently asked questions to help you understand the need for pediatric home care for your medically fragile child: 

What important factors should you know when taking pediatric home care?

Parents should consider various factors when seeking pediatric care for their infants. Special mentions include creating a child-friendly space, making emergency plans, developing trust with their infant, and coordinating with professionals.  

What illness does pediatric in-home care manage?

Pediatric home health care focuses on managing various common conditions. Some of these diseases include chronic pain, wound care, cardiac disease, and chronic respiratory diseases. Furthermore, if your baby’s condition persists, consult a doctor immediately.